Catalonia, session 5: Making existing health data usable for EHDS

Decisions and trade-offs in Spain, Portugal and Italy

• Making existing data usable: what to do with historical records, PDFs, inconsistent coding and missing clinical context.
• Beyond exchanging data: how to preserve clinical meaning so information can be understood and reused across organisations and borders.
• Working with existing systems: what to connect, map or change, and how to decide where to start.
• Responsibility for data quality: who defines the requirements, validates transformed data and decides whether it is fit for care or research.
• Decisions that will be costly to undo: how procurement, supplier contracts and data architecture affect future EHDS implementation.
• Lessons across Spain, Portugal and Italy: what can be reused, what needs local adaptation and which challenges remain unresolved.

What happens when data can be exchanged, but still cannot be reliably understood or reused?

More speakers will be announced.